Jerrabomberra mother Kelly Thomas says she's not a parent that accepts no for an answer.
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When she was told by the National Disability Insurance Scheme she was unable to get a special change table to make things easier to care for her six-year-old daughter Jordan, who has Rett Syndrome, as part of her plan, she turned to the community for help.
And the community responded, with the Jerrabomberra Rotary Club helping to donate a $4200 change table to assist in Jordan's care.
"It's been overwhelming. It's nice to know if you find a no, you can ask the community for a yes, and they've come on board," Ms Thomas said.
Jordan was diagnosed with Rett Syndrome four years ago, a rare genetic neurological disorder that occurs in one in 10,000 people and is primarily seen in girls, although boys can also be diagnosed with the condition.
Symptoms include a loss of speech, loss of mobility, scoliosis, a slowed rate of growth and breathing issues.
As a result, Jordan is tube fed and has to be changed up to 10 times a day.
However, Ms Thomas said the previous arrangement in order change Jordan multiple times a day was back breaking, which was also leading to injuries.
"I would have to use the hoist and sling to put her back into the wheelchair, then carry her 35 steps down to her bedroom and come back to get the hoist and then hoist her onto the bed to change her and repeat the process to go back," Ms Thomas said.
"It was a really long process and she also has scoliosis and hip dysplasia, and it meant a great deal of lifting involved."
While Jordan has funding through the NDIS for support, no funds were available for a specially-made change table, and the family were unable to afford one for Jordan's needs.
After reaching out to Technology for Ageing and Disability ACT for assistance in sourcing such a table, the Jerrabomberra Rotary Club was able to negotiate an almost-at-cost price for a new table.
The table was purchased by the club despite the Rotary not being able to do community fundraising this year due to the impact of coronavirus.
The change table was donated to the Thomas family on Monday afternoon, and is also the same one used during a trial of such a change table before the NDIS declined funding.
Ms Thomas said the change table would make a massive difference.
"It means there will be less movement for Jordan and her needs will be better met than what they were in the past," she said.
"It will also mean the environment around the home as well will be that little bit easier on me and my husband.
"I'm still overwhelmed with all of the support."