Get Involved
We want New Zealanders all over the motu to glow up and show up for rare to show the rare community that they are valued and deserve better support.
We can't wait to again call on Aotearoa to Glow up and Show up for Rare during the month of March to show support for the 300,000 Kiwis living with a rare disorder.
The campaign will be kicking off on International Rare Disease Day, which - this year being a leap year - will be on the very rarest of days - 29 February!
You can donate at any time to our givealittle page here.
What better opportunity to celebrate rarity in your community!
Our inaugural Rare Disorders Month campaign in 2023 was a great success! Read more about it here.
Together we can bring rare disorders out of the darkness, and into the light.
How will you Glow Up and Show Up for Rare?
We want New Zealanders all over the motu to glow up and show up for rare to show the rare community that they are valued and deserve better support.
#GlowUpShowUp #DoRightByRare #RareDisordersMonthWe need YOUR help to make these hashtags go viral over the month of March!
A short reflective essay competition for health professional students.
Raise your hands to #GlowUpShowUp for rare with our neat temporary tattoos!
We have created a number of campaign assets for the community to download and use to help spread awareness and support for the Glow Up and Show Up for Rare campaign.
If you are organising an event in your community, let us know so we can include it here!
Buildings and monuments that will be glowing up for rare on Rare Disease Day 2024
Rare Disease Day is a day of global solidarity, marked each year around the world on the last day of February (the rarest day of the year) to raise awareness and to advocate for equity for rare disorders.